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What is Retinitis Pigmentosa – Treatment, Prevention, Facts and Statistics

Retinitis pigmentosa is rare in the United States. One in 4000 children is diagnosed with this progressive eye disease. Techniques like electroretinography (ERG) and visual field testing diagnose this disease by keeping a note of the progressive loss of functioning of the photoreceptor cells in the eyes. This article tries to understand the treatment and prevention methods of this ailment.

Treatment of Retinitis Pigmentosa:

  • Daily intake of 15000 IU or 4.5 mg of vitamin A palmitate can reduce the progression of this disease.
  • Vitamin A supplementation intake in regular basis is found to delay the blindness up to 10 years as per recent research studies.
  • Retinal transplants, gene therapy, artificial retinal implants, stem cells, gene therapy, drug therapies and nutritional supplements are some of the treatment options which will be available in the near future.
  • Researchers at the Osaka Bioscience Institute discovered a protein Pikachurin which is believed to treat this disease.
  • In another research study, scientists at the University College London Institutes of Ophthalmology and Child Health and Moorfields Eye Hospital could restore the regenerative ability of a mature retina in experimental mice using stem cell transplantation.
  • The positive results suggest that this process can be successfully applied on humans too to cure blindness.

Prevention of Retinitis Pigmentosa:

Since the disease is of the genetic origin, there are no proven methods to prevent it. Presently the efforts are focused on inhibiting the progressive deterioration in the functioning of the photoreceptor cells.

Facts and Statistics on Retinitis Pigmentosa:

  • It is one of the most common forms of retinal degeneration inherited from one generation to another.
  • Friedreich’s ataxia, cataracts, Laurence-Moon syndrome, Usher syndrome, Mucopolysaccharidosis and Muscular dystrophy are some of the complications associated with this disease.
  • Mutations in the gene rhodopsin is responsible for nearly 25 percent of autosomal dominant forms of this disease.

6 responses to What is Retinitis Pigmentosa – Treatment, Prevention, Facts and Statistics

  1. I’m Yulianti from Indonesia. I’m 37 years old. I’m also have a retinitis pigmentosa eye disease and i just want to ask what kind of protein pikachurin. How to buy it? where can i get that protein? how to use it? or how to cure my eyes from retinitis pigmentosa?
    I really need it to prevent my eye from blindness.
    please reply me…

    Thank you for everything

  2. I’m Erita from Indonesia, 42 years old. We’re 3 (three) altogether in my family, 1 man and 2 women. I and my sister hv Retinitis Pigmentosa. In order to this diseases my sister, 47 years old, getting blindness now. My eyes also is getting worst to see. We would like to get the GENE THERAPY or other alternative medecines for us in Indonesia. How and where could we gat the therpy. Wold you please help us….. .. Your kind helpfull is very apppeciated. FYI, my brother is not having retinitis pigmentosa.

    Thank you very much.

  3. HI IAM HAVING RP PROBLEM AND DOCTOR SAY THERE IS NO CURE BUT VITAMIN A CAN AVOID FUTHER PROBLEM , CAN U PLS GUIDE ME AS TO HAT WILL HALP ME TO IMPROVE MY EYE PROBLEM,

    THANKS IN ADVANCE

  4. Dear Dr,

    We all are three my younger sister aged 30 now and she have weak low vision since birth. And now my Elder brother aged 40 now having RP Problem, he failed to see in dark. but some time also difficulty in seeing object at day time. In dark he see nothing, get total blind but can see in very low light. During last 3 years he having problem in seeing at night, even he cannot drive at dark area? Please guide me.

    Do his vision get worse ? If yes at what age? He is still bachelor, Is there any treatment, supplement?

    Reply me at your earliest at my email as soon as possible.

    Shall be thankful to you.

    Afshan

  5. I am having RP together with my brother. Wonder where to get the Pikachuin from Osaka. Please help

  6. hi i am suffering from retinits pigmentosa the doctor say there is not any cure if there is any thing pls tell me now

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