Albinism – Preventive and Home Care Treatment of Albinism
Prevention is the treatment forcure of albinism, because it is an inherited disorder. Genetic counselling can be given. Doctors can treat the eye problems but cannot cure it completely. Skin care before sun exposure, crossed eyes can be treated using eye patches during infancy. Doctors advise albinism patients, to avoid exposure to sun, unless its an emergency.
The preventive treatment includes the following:
Protection of the skin:
- Avoid sun rays as there is a risk of sunburn and skin cancer.
- Sunscreen lotion should be used if you are getting exposed to sun.
- The skin should be covered as much as possible by clothing yourself well before getting exposed to sun.
- Surgery can be an option to remove or treat skin cancer.
- Today, UV proof swim suits and other clothing can also be used.
- Photo phobia can be reduced with the use of sunglasses.
- Sunglasses with UV protection can be used when exposed to sun.
- Surgery can be done to correct eye problems like crossed eye.
- In a classroom, visual aids can be used to help children suffering from albinism.
- Eyeglasses, contact lens and optical aids can be used to improve the eyesight.
- A seat in the front row of the classroom will help a child with visual impairment.
- Text books that are printed in large letters can be used.
- The printed document should be black print on a white page.
Support Groups for Albinism patients
- At some point of their lives, they face discrimination.
- The National Organization for Albinism and Hypo pigmentation is an organization which supports and cares for people suffering from Albinism.
- This organization helps them in their education and provides psychological support.
Prognosis of Albinism
- Albinism directly does not affect the lifespan.
- Lung disease and any other bleeding problems can shorten the life span.
- People suffering with Albinism can only do limited activities because of their intolerance to sun.
Care at Home
Teach your child self care practices that they may continue till adulthood. The self-care practices include:
- Low vision aids like a magnifier or a monocular can be used.
- Sunscreen lotions with sun protection factor of at least 30 should be used.
- Make your child wear long sleeved shirts and pants and broad hats.
- UV blocking sunglasses can be used for children before exposure to the sun.
Coping and Support
- People suffering from albinism fail to cope with vision impairment.
- Teach a child to hold the book close and read as this does not harm the eye.
- Teach a child to cope with teasing and encourage the child to talk.
- Tell your child to express his or her feelings.
- Make the child respond to embarrassing questions or teasing.
- Consult a psychotherapist who helps your child to develop coping skills and healthy communication skills.